Nina is a beautiful two year old little girl who suffers from SMA Spinal Muscle Atrophy. As the treatments, stays in specialized facilities and equipment are very expensive, we decided to be long term financial partner and help with everything Ninka and her family needed.
Spinal muscular atrophy (SMA) is a rare neuromuscular disorder that results in the loss of motor neurons and progressive muscle wasting. It is usually diagnosed in infancy or early childhood and as Nina was diagnosed at the sixth month of her life, everything for her and her family changed in an instant.
Instead of watching a healthy baby grow, Ninka’s parents started gathering information about the disease and having various meetings with specialized doctors.
Nina was diagnosed with SMA (spinal muscular atrophy) and now she also has to live with diabetes as a side effect of the life saving GEN therapy treatment she received.
The only way she could ever sit up was with the help of a special corset that only experts in Vienna know how to develop.
Unfortunately our health care system doesn’t provide financial funding of special aid for patients with SMA.
We were very moved by her story so we came onboard and provided the very much needed financial help for the purchase of this corset. We also funded muscular therapies, swimming sessions that help the muscles to stay in shape, and we are contributing to the purchase of the special vertical standing frame that will tighten the whole body and improve Ninka’s blood flow.
